In an alternate universe with cancer / Kanserli Paralel Evrende

Chemobrain / Kemo kafasi (Turkce altta) The doctor had said it: You may find it harder to focus or concentrate. It didn't bother me at the time. I was already very easily distracted, yet, who isn't these days? There is a constant flow of incoming information, even if you mute all the notifications, it is somewhere at the back of your brain. You need to check your phone! It becomes an overwhelming habit, and when you realize what it has become, the fight begins. I try not to check my phone very frequently but I think about that too, so I am distracted either way, just the duration of the distraction became much shorter. Anyways, I was already unsatisfied by my lack of focus especially while I'm reading a book, watching a movie or in a concert. I would catch myself thinking completely irrelevant things. I was never in the moment. I was doing things that I thought I would enjoy but couldn't enjoy them because I was simply not there. My mind was wandering in the worries

Psychologist / Psikolog (Turkce altta) I had an appointment with the psychologist today. I had my doubts, because years ago I had been to one and hated the experience. I always resisted the idea ever since. However, with all that's going on with my life, and as a result of my friends' critisism of my prejudice, I thought I should try once more. I have been to a psychiatrist who prescribed an antidepressant for my mild depression and xanax for my sleeplessness. But I knew my physiological reactions were rooted back to many years of painful experiences and memories related to cancer in my family. The 1.5 hour session flew by. Mostly I talked, with the psychologist asking questions from time to time. It was good to even try to figure out what really makes me scared, and how I define being "healed" or "normal".Trying to discover the root cause of your fears may be very trivial but I am surprised when I discovered I hadn't thought about it. Once you ide

An inch of cheer / 1 cm' lik sevinc (Turkce altta) I was going to wash my face when I noticed it. I had pulled my hair back (I mean the wig's hair) a bit further than usual, that's how I saw it. I had sideburns??!! I used to be bald in all those areas for months. My chemotherapy hadn't finished, so I thought ok, I don't know but this should be a false reflection. Slowly, I started opening up the wig's stickers, there it was: I had hair!! It is very short and soft and a lot of it is white, but I don't care! It felt like the disease was gone and I beat it. I wasn't aware that back in my mind, I had associated the hair with being sick, I thought I was pretty cool and accepting about the whole hair issue. But when I started crying with joy, I think for the second time all my life, I realized how important it was to me. I think a big part of it was because it came as a total surprise. I was not expecting to see any hair at all until about a month after th

Chemotherapy (2) /  Kemoterapi  (2) -  Turkce   altta Before the chemotherapy started I was really curious about how bad it will affect me, so I wanted to share my experience in more detail especially regarding my physical condition. Please keep in mind that we are different in all sorts of ways and our experiences may be very different than one another, but still it made me feel good to hear other people's experiences so that I could prepare myself better.  My first drug was given every two weeks as I had explained in my previous post. I felt nothing during the time drugs were given, except for a severe pain in my sinuses during the last 10 minutes. It would go away in 20 minutes without taking any medicine for it. The doctor had prescribed a strong antiemetic for 3 days starting on the day of chemo. If that does not prevent the nausea, other  antiemetics  were available, and they all worked fine. I usually had sleepless nights in the first days of each cycle, sometimes p

Anxiety / Kaygi (Turkce altta) After the 15 minutes I spent crying and thinking in my bed the day I learned about the diagnosis (the 15 min I told you about in my "Diagnosis" post), I was up on my feet ready for whatever comes. I felt strong and ready to fight. It was the beginning of summer, so if chemo allowed I could spend it with friends, relaxing in the sun, finding serenity. I was hopeful and even more joyful than I am in normal life. I was even surprised at myself, I had never loved life that much and felt so positive. Yes, those were good times.. Then I was through the first 3 months of chemo, the drugs were starting to beat me down. I was feeling worse physically and that physical deprivation brings about these feelings and thoughts of  "I am not well, what if the treatment doesn't work, what if the cancer is spreading just now, will I die at this age" You get the picture. I started having sleepless nights with all these going on in my head like a n

Chemotherapy / Kemoterapi (Turkce altta) My whole world collapsed when I heard the doctor say the word. It was associated with so many bad memories, it meant being weak and in pain, and worst of all being in need. I was brought up and also grew to be very self sustained; I was strong and could do whatever I want without asking anybody's help. It took me a while to understand that it's ok to ask someone do something for you. I never dreaded when a friend or family asked me to do something but somehow this was very hard for me to overcome. Certainly chemotherapy helped :) First of all, it was not (and still is not- 4 months over,1 more to go) as bad as I thought it would be. I spent few days in bed, I cannot say I functioned normally on the rest, but it is ok. You just learn your new limits, and those limits are not very restricting. I cannot go out running as I used to, I walk instead or I plan more coffee breaks when I am out and try not to wear myself out. My treatment c

Changes to Lifestyle / Hayatimda degisenler (Turkce altta) There has been many major changes but the most dramatic one was to move back to my hometown to live with my father. That meant a long sick leave from work, being away from my own home and friends. This was sort of out of my control and the best option I had, but there are other things that I took the initiative to change:  - Food : Meat: For the past ~20 years I had reduced my meat intake, I had stopped eating poultry and fish, and limited my red meat consumption to once a week. I tried to but failed in substituting the necessary ingredients from the vegetables. So instead of trying to make this work among other things I'm dealing with, I decided to remove these restrictions and maintain a balanced diet of all kinds of meat and vegetables. I am not saying you should stop being vegetarian, I just chose to do this, call it survival instinct or barbarian, honestly I don't care Sugar: I reduced my sugar intake d

Regrets / Pismanliklar (Turkce altta) The night I found the lump on my breast, I couldn't sleep and made the earliest appointment I could find with a specialist in the morning. I spent that night torturing myself about all the things I had and hadn't done. Here's a quick summary of my why's: -Why didn't i quit my job knowing it stressed me out so much? -Why did I put up with people knowing that they hurt and will hurt me more until they hurt me more? -Why do i always get along ok, is it because i really have no preferences or is it due to my everlasting quest for pleasing people? -Why did I drink so much alcohol? -Why didn't I get psychological help? -Why didn't I take more time off? -Why did I push myself to limits that much? Both physically and psychologically I know the list may change for each and everyone of you. But I guess mine boils down to awareness. I was simply unaware, and by the time I was, it was sort of late. I am not

First post / Ilk yazim (Turkce altta) This is my first blog ever, in fact in retrospect I haven't even read one before. So why start now? At first I thought I should build a forum, where people with cancer, like me, can share their experiences. What I meant by that was not only the treatments and their effects but how small practical things like drawing an eyebrow-if that's what you want :)- can stop being an issue besides all the bigger stuff that we are already dealing with. Then I browsed through the forums in my native tongue (which is Turkish) and after a few posts I got so depressed that I don't even want to look at that site anymore. I know there is a lot going on, maybe I am one of the luckier ones with my type of diagnosis but reading about sorrows and death certainly doesn't help someone trying to recover. And since I couldn't think of a way to constantly monitor what people can and cannot post on a forum, I decided I can start a blog and maybe p

Diagnosis / Teshis (Turkce altta) I don't know how you felt when you first heard the news. I was totally not there. It was as if I were an outsider watching, the doctor was telling somebody about some tumor; there are 4 types, this is the 2nd best and it is treatable. Ok this should be good news, I was listening but not processing well. I don't even remember most of the conversation now. I couldn't come up with any questions. Then my doer personality kicks in, and all I could say was "So what do we do next?" Next: there will be both an operation and chemotherapy but the order may be changed. They decided to go with the chemo first to take the chance of making the tumor smaller before the operation. I left the doctor's room thinking this cannot be happening to me. I lost my mom and my aunt to cancer, much before them my grandfather. And now me? At the age of 35, I couldn't believe it. Although their diagnoses were completely different, I was being tre